SayAphasia is a new charity set up to help people in Sussex who have Aphasia.
Colin Lyall had a stroke five years ago and decided to set up a charity for people like him with Aphasia.
He set up the charity in November 2016 with the help of 'five amazing trustees'.
List of trustees to go here
SayAphasia runs a drop-in between 10.30 and 12.30 at the Central United Reformed Church in Hove.
If you have Aphasia and would like to join the drop in you can simply drop in or, if you'd prefer, you can contact Colin beforehand. His telephone number is 07796 143118 and his e-mail is [email protected]
SayAphasia also organise trips and outings where people with Aphasia can spend some fun time together doing things they enjoy.
'I met Colin in 1989 at JB&B (engineering consultancy company) and became best mates.
I stated my company MTT in 2000 and Colin joined me in 2001.
I have a son (Sam) who was born with a chromosome disorder so Colin, myself and two others began running multi-marathons to raise money for 'Small Steps'. Small steps is a school for disabled children under 5. Sam went there until he was 2.
I am involved because Colin is my best mate and I think it's great that he is doing this.'
David and Colin on a recent walking holiday in Spain
'I literally didn't know what Aphasia was until Colin was ABLE to explain it to me about 18 months ago.
Setting up the charity has been Colin's focus for some time now and shows his tenacity and determination have not diminished with the condition.
It has been a great project for him to build confidence with and even after some 'kick backs' he remains very upbeat about its success, I'm more than happy to support SayAphasia in any way I can and am actually very proud of my little bro!'
'I am a Speech and Language Therapist specialising in adult neurology, particularly supporting people with communication difficulties following stroke or other acquired brain injuries. During my work at Sussex Community NHS Trust, I helped to establish and led the Aphasia Befriending Scheme with Connect (the Communication Disability Network). It was through this role, that I met the current peer leaders of 'Say Aphasia'.
The peer leaders are a fantastic group of people who run a drop-in service in Brighton and Hove, supporting others with aphasia. I have worked as the Outreach Project Mentor for the Brighton and Hove aphasia drop-in group since February 2014 following its launch in October 2013 by Connect. I am proud to be a Trustee of Say Aphasia and continue to help out at the group.'