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  1. About us
  2. Why we exist

Why we exist

Aphasia breaks people's connection from their families, friends and their world.

SAY APHASIA HELPS PEOPLE RESTORE CONNECTION.

 

Say Aphasia provides a supportive, inclusive space where adults with an acquired communication disability can connect, feel understood, and feel confident living with the condition.

We strive for a world where people with aphasia stay connected to society and have a good quality of life.

 

 

 

 

The founder of this charity, Colin Lyall had an incident which resulted in him having aphasia. In his case, he had a stroke in 2013 at the age of 50. To him and his family, he seemed to be too young to experience a stroke. That is why we welcome anyone of any age. As we have now learned that strokes can unfortunately occur in someone's 20’s.

 

Following the stroke, Colin was confused and could not fully comprehend what had happened to him. It took him about a year to fully understand what was happening to his brain.

 

This charity knows first hand the confusion, frustration and change that a stroke can have on a person and their family.

 

We know that aphasia is not only a result of a stroke, but also head injury, brain haemorrhage, or a brain tumour. We are focused on supporting anyone with aphasia or similar acquired communication conditions, such as dysarthria and apraxia.

 

We are supported by many professionals such as speech therapists and rehabilitation teams. AS well as organisations such as the Stroke Association and Aphasia Alliance.  Our charity prides itself in being peer led by people with first hand experience of aphasia.

 

click here to visit one of our groups 

 


What we do is important to us: 

From experiencing it ourselves, we understand how much of an impact aphasia has on people's lives.

We understand the struggles to adapt to this new way of life after a stroke or brain injury. And we know how isolating it can be.

Especially when you cannot communicate in the same way you did before.

One of the things that makes this time so isolating is the fact that others do not understand what is happening to you.

When family and friends struggle to communicate with you, or struggle to see you as the same person as before, we want to step in and help them to understand your condition.

 

Say Aphasia charity work hard to help raise awareness and understanding of aphasia, on your behalf.
With better knowledge and understanding of aphasia, comes acceptance and better communication from your friends and family.

 

We have put together an information booklet to help you and your family understand aphasia.

Say Aphasia Information Booklet


Published: 3rd January, 2020

Updated: 9th June, 2026

Author:

Comments: 1

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9 Gatton Park Lane
Brighton
BN1 5BQ

+44 (0)7796 143118
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